Page 2 Updates
August 22 Treatment cancelled due to bad Blood levels.
Sept 5 Pre Chemo day.
Oct 22 cancelled due to having covid.
20 jan 23.
Long overdue update. So much has happened since last update. Due to the last trial not working and nothing on offer she was discharged from the Marsden. Returned to Kent and Canturbury. Scan results showed progression resulting in chemo. Which had a minimal result Even more breakout and spreading. Things looked bleak. Now suffering lots of pain she wasn prescribed Morphine and pain killers which helped. Then a course of radiation which did little.
Due to another scan with more bad news another 6 sessions of chemo of which only 4 were taken and Mavis said enough is a enough and so stopped treatment. The last scan was in october 23 results were no further regression. Our next appointment is in February 23 . So its WTS.
30 April 23
last scan 20% increase. And now 24/7 pain. She is still working her socks off we have yesterday got home from 4 days in Belfast BTOG. Totally shattered. Latest is, she has been interviewed fand accepted for the Nero Trial waiting for Start date.
3rd July 23
The past 7 weeks have been a nightmare Mavis has spent every day in bed sick lifeless can no longer walk unaided has a paralized arm. She is in pain 24/7 now. She is on so much morphine most of the time she doesnt know where she is. Ive had to take on my full role as her carer I now do everything I can for her.
At this point in time I dont forsee any improvement.She is no longer well enough to travel to conferences which upsets her. I pray for any improvement. Due to her condition she decided to cancel her place on the Nero trial. A she cant travel B the thought of all that is involved to maybe get a plasebo she said enough is enough.
,22nd July 23
After several GP and Home hospice appointments. Its confirmed her condition is now progressive. She now has an electric mobility scooter to help her from room to room and any other appointments she has. She is on loads of morphine and she sleeps all day and is still in pain
Things have moved on in leaps and bounds. mavis is now bed bound 24/7 She only has the use of 1 arm and almost none in her legs. She is totally dependant on me and the home help team The disease progressed rapidly over a few weeks. She no longer able to travel.